Event, Happening 15 Jun 2022

Facebook Live: JIA Awareness Week Live

Join us for our Facebook Live Session during our first ever, JIA Awareness Week!
Click this link at the time of the event
When
15 Jun 2022, 6:30pm
Where
Online – Zoom

Debbie our Young Persons’ Project Manager will be holding a Facebook Live Session on Wednesday 15th June at 6.30pm during our first ever JIA Awareness Week #SameJIADifferentDay. We are delighted to be joined by Chloe Umpleby, who was recently on BBC Breakfast discussing her JIA, and Ellie Farr member of our Young Voices Panel. We will be discussing what is like to live with arthritis, how we are trying to raising awareness of JIA and that children and young people can have arthritis, it is not an old persons’ disease.

Please remember, you don’t need a Facebook account to watch, just click the button above at the time of the event!

Who will be joining us?

Chloe Umpleby – @xchloeumplebyx

Chloe has become an ever growing presence within the JIA community. At just 22 years old, she runs @_chronically_happy_, a social media community that shares positive stories from its ‘Chronic Warriors’. Recently Chloe appeared on national television, speaking to BBC Breakfast about her condition and her story.

Ellie Farr – @eleanorrr94

Ellie is a long term NRAS Ambassador and part of our Young Voices Panel. She is a professional photographer and model, winning Miss North West in 2021. Ellie was diagnosed when she was 19 with JIA, but is now in remission.

What is JIA Awareness Week?

Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay.

The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and the general population about what juvenile idiopathic arthritis truly is. JIA is very different to osteoarthritis (OA) in that it can strike at any age under 16 and around half of those diagnosed each year will have it for life. It is an auto-immune disease, which is a key differentiating factor to OA and means that in addition to joints, it can affect organs such as the eyes. There are very serious consequences to getting a late diagnosis or a lack of targeted appropriate treatment.

JIA Awareness Week 2022 | 13-17 June

Get involved with JIA Awareness Week 2022! This year we are focusing on the fluctuating condition that JIA is and no two days are the same living with JIA. #SameJIADifferentDay

NRAS in 2021

  • £ 0 raised through #WearPurpleForJIA 2020
  • 0 Calls answered
  • 0 Publications sent out
  • 0 People reached