Who we are

JIA-at-NRAS is a part of the National Rheumatoid Arthritis Society (NRAS). We design, coordinate, fund and deliver a comprehensive and wide range of high quality products and services for all affected by RA and JIA.

Juvenile Idiopathic Arthritis at NRAS

JIA-at-NRAS is a service launched by the National Rheumatoid Arthritis Society.

From the Chief Executive

The National Rheumatoid Arthritis Society was founded in 2001 and is the only UK charity devoted specifically to offering support, information and advocacy for those living with Rheumatoid Arthritis and since 2014 those living with Juvenile Idiopathic Arthritis.

In 2012 NRAS conducted a review of JIA and JIA services across the UK with a view to being able to start to provide a much more comprehensive service for families and young people affected by JIA.

The first thing we did was to spend a year producing a major report, ‘A Focus on JIA’ by visiting rheumatology and paediatric rheumatology centres across the UK to find out what the state of JIA service provision was. We talked to many different clinicians and allied health professionals, parents, young people with JIA and NHS Managers and effectively mapped what service provision looked like. 

It is important to be clear to anyone affected by JIA who is reading this or interacting with our JIA-at-NRAS web area that JIA and RA are not the same while they are both inflammatory forms of arthritis they do differ in many ways.  Very importantly JIA does not ‘become’ RA after the age of 16. If you are diagnosed with JIA, then you continue to have JIA, unless your disease goes into remission, after the age of 16. Another important aspect of JIA is that it is not one disease, it has a number of different types and you can read about the different types here.

This website for those affected by JIA will provide you with the information about JIA and living with JIA which you are seeking,

With best wishes

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Clare Jacklin

NRAS CEO

About Us

Our Vision

A world not burdened by RA or JIA

Our Mission

To enable the RA & JIA community to thrive by providing access to

  • Support
  • Engagement
  • Expert Knowledge
  • Research
  • Campaigning

all of which is informed by those living with these complex and currently incurable auto-immune diseases.

Our Core Values  

We approach our commitment and responsibilities to all with empathy, professionalism, passion and enthusiasm. We continually strive to achieve the best results and outcomes that we can for those we represent. These core values underpin the way we work. 

At all times, we act: 

We work openly and ethically, with integrity, honesty and independence.

We are creative and constantly challenge the status quo, always striving for better and looking for new ways to add value, whilst basing what we say and do on the best evidence and our Members’ experiences.

Our staff are not just enthusiastic and committed, they are passionate about making a positive difference for all those we represent.

We work with many different organisations, contributing significantly to alliances and coalitions.

We are results focused and deliver on our projects and campaigns. Our many awards are testament to our achievements.

We act with sensitivity and compassion, respecting the needs and preferences of the individual regardless of nationality, creed, gender, age or ethnicity, while at the same time representing the entire community affected by RA or JIA in the UK, encompassing adults and young people, families, carers and rheumatology healthcare professionals.

Clare Jacklin

Chief Executive

Debbie Wilson

Young Persons Project Co-ordinator

Ailsa Bosworth

NRAS National Patient Champion

Helen Ball

Finance Director

Stuart Munday

Director of Fundraising & Marketing

Sarah Watford

Information and Support Coordinator

Debbie Skinner

Information and Support Coordinator

Nadine Garland

Support Services Manager

Victoria Butler

Publications and Information Resource Manager

Raman Fenech

Events Fundraiser

Tracy Bracher

Membership Officer

Emma Sanders

Individual Giving Officer

Bronwen Cranfield

Community Fundraiser

Helen Saich

Trusts and Company Giving Fundraiser

Emma Spicer

Trusts and Giving Manager

Anita Masih

Digital Marketing Manager

Truna Patel

Finance Assistant

Geoff West

Digital Marketing Officer

Janet Brewer

Engagement Manager

Aribah Rizvi

Digital Marketing Assistant

Sam Grant-Riach

Office Manager

Naomie Bwalya

Volunteer Coordinator

Hannah Jacklin

Office Administrator

Sally Matthews

Research Coordinator

Eleanor Keenan

Marketing and Communications Officer

Kim Fitchett

Executive Assistant to Clare Jacklin

Lynne Fleming

Receptionist & Office Administrator

Eleanor has worked in various roles in the Civil Service. Currently in the Cabinet Office, she focuses on digital and data policy working to make the UK a great place for citizens and businesses to be online. Before this, Eleanor was at University studying Human Sciences – a course combining genetics, statistics, sociology and demography.  

Eleanor was diagnosed with JIA when she was 12. It is a cause particularly close to her and her family as her mum and grandad both suffer. She is particularly interested in JIA and services NRAS provides to young people, chairing the NRAS Young Voices committee alongside her work as a Trustee.  

Now living with friends in London, Eleanor grew up in Warwickshire. She enjoys keeping busy cycling, skiing and climbing as well as socialising with friends and family. 

Rich works for ScoutsCymru as Head of Strategy supporting the Organisations Groups across Wales. He has a wide range of experience within the Voluntary Sector including Charity Governance, Volunteer support, Communications and External Affairs. 

 Having been diagnosed with RA in 2014, NRAS was the organisation Rich turned to for support and advice in understanding the condition. Living in Wales and at the time NRAS was creating its Campaigns Networks, Rich wanted to put some of experiences forward and took on a role within the NRAS Welsh Ambassadors, supporting the Organisations work in lobbying Welsh Government and engaging with stakeholders to move Rheumatology services forward in Wales, including supporting the work of JIA at NRAS in the campaign for a Paediatric Rheumatology Service for Wales. 

 Rich is married with four children, and enjoys visiting Historical sites and baking.

Lindsey has over  20 years’ experience working alongside executive level authorities in the Life sciences, charities and the NHS sectors.  She is an accomplished project manager, having led several high profile, award-winning national healthcare projects, and has also contributed to the development of national policy.  In addition to these achievements, she co-founded ‘Wicked Minds’ in 2012, a healthcare consultancy firm specialising in creating bespoke solutions to ‘Wicked problems’ in health and social care. Prior to setting up the company she held various senior roles within the Pharmaceutical Industry, where she contributed to patient advocacy, policy change, programme development, strategy development, and multi-sector partnership working. 

Lindsey has a BSc Hons in Biology and has held significant board appointments mainly within the health sector including as a Board Member, Chairperson and Vice Chair.  In addition to the healthcare consultancy Lindsey’s also a Non-Executive Director, Mentor, Trustee for Anglia Care Trust,  Board Member of the NHS Chemotherapy Clinical Reference Group and Eastern Academic Health Science Network Innovation Review Panel Member. Lindsey wanted to use her healthcare knowledge to support NRAS and became a Trustee in 2020 

Lindsey is married to Darren and has 2 miniature Yorkshire Terriers called Barkley and Peanut. She is a keen hiker and traveller.

Simone Webb was born and raised in London and is a first-generation Jamaican migrant. After being diagnosed with rheumatoid arthritis as a Biology undergraduate in 2018, Simone chose to focus her academic research on the immune system and what constitutes a ‘normal’ immune system. She is now a PhD researcher in Bioinformatics and Immunology at Newcastle University, where she researches how blood and immune cells form during fetal development.  

Simone has several years of experience working within decision-making bodies in the charity sector, which began with a seven-year service on the UK and international Youth Advisory Panels for the children’s rights charity, Plan UK. Simone is keen to bring her knowledge of science, diversity and inclusion and RA diagnosis in young people to the future work of NRAS. Simone enjoys cooking and listening to music in her spare time.  

Gordon has worked in Marketing and General Management with a focus on Health Care for over 30 years in Blue Chip companies such as Procter & Gamble, Danone Nutricia and Smith & Nephew and is currently Head of International Marketing at Alcon.  In addition to his broad commercial leadership he brings experience in collaborating with Health Care Professionals on new therapies, developing high performing diverse teams and corporate governance projects such as risk management.    

As members of his immediate family have autoimmune diseases, Gordon understands all too well the impact inflammatory conditions such as RA can have on patients and carers, and what is needed in terms of solutions and support to enable them continue to do the things they enjoy.  

As an active member of the Board of Trustees, he is committed to working closely with Clare and her Management Team to ensure we maintain a solid, sustainable strategic plan, and regular review of our activities to ensure NRAS continues to do the best possible job to support all with RA or JIA to live life to the full. 

Gordon is married to Fiona, a chartered Physiotherapist, with 3 grown up children, and after many years living & working abroad, now live in the New Forest with their cats, dogs & horses. They also enjoy sailing, skiing and fell walking.

Zoë has worked in the City of London for 25 years and currently runs a specialist executive search business which finds Research and Quantitative Analysts on behalf of banks and fund managers. 

Diagnosed with RA in her thirties (while working for an Inter-dealer Broker) she found NRAS’s information hugely supportive, enabling her to continue to work full time in an intensely competitive and unforgiving environment.  

Outside of trustee duties Zoë has a particular interest in RA Scientific Research and Audit. She was the first patient lead for the National Audit for Rheumatoid and Early Inflammatory Arthritis and continues to work with researchers and clinicians looking to reduce variation in RA care.  Zoë also supports NRAS by helping to raise the profile of personalised medicine in RA. She is lay chair of a European Stratified Medicine Initiative/consortium MATURA and also is the patient RA advisor for 3TR – an international project which is looking to share personalised treatment trial findings across 7 autoimmune conditions. 

Zoë lives in Teddington with her husband. In her spare time she can be found pottering in Bushy Park with her Shih Tzu George. 

Kirsten is a partner at KPMG, working in the office of general counsel and specialising in employment law. She leads a team that advises KPMG on all internal partner and employment related issues. She is experienced in managing senior stakeholders and multi skilled teams and Kirsten is former chair of the UK In House Employment Lawyers network. 

Kirsten understands the impact that RA can have on individuals and their family, as a very close family member has moderate to severe RA. She is keen to use her personal and business knowledge to help NRAS to support its members and to raise awareness of RA. 

Simon is a chartered engineer who has spent the majority of his career working in engineering consultancy in the rail and highway sectors. His experience includes business leadership with responsibility for service delivery, commercial management and business performance. He is keen to apply the experience gained during his career for the benefit of NRAS, and to maximise the help it can bring to people with RA. 

Simon became aware of the enormously valuable work of NRAS through his wife Sarah, a long-term RA sufferer and NRAS member. Through her involvement with NRAS he has been able to appreciate the extensive range of services which the organisation provides, and the positive impact it makes on the lives of those living with RA. 

As Chair of the Board of Trustees Simon works closely with Clare, her Management Team and the Board to provide strategic direction to NRAS, ensuring sound finances and securing a sustainable future for the charity. Our aim is to continue to broaden the reach and appeal of NRAS amongst all those who suffer from RA and JIA and provide them with the best available support and understanding.  

Simon has three step children and lives in Gloucestershire with Sarah and their two dogs. 

Richard has worked for Anglian Water for most of his career and has been Business Change & Strategy Director for the past six years. Richard has a wide range of experience, from day to day operations through to the disposal of international companies. His current role involves the development of business strategy and its implementation, managing investment decisions as well as risk management across the group. 

Having been diagnosed with RA in 2015, the NRAS website was one of the first sites Richard visited to understand more about RA. Recognising the benefit NRAS gives to those newly diagnosed with RA he is keen to support and contribute to our work. Richard has been very active in charity work, chairing the company’s WaterAid fundraising committee since 2011, experience he hopes will also benefit NRAS. 

Richard is married with four children, and is keen to remain as active as possible – enjoying most sports, especially cycling, swimming and climbing.

Steve is a qualified ACA and prior to recently retiring, worked for more than 30 years in Finance including 18 years at Price Waterhouse Coopers, 6 years of which as a partner specialising in due diligence work for Private Equity. He has held Chief Finance Officer roles working with Private Equity at Merlin Communications, Sepura and The Good Care Group – achieving successful exits for each company. Steve has also held the role of Corporate Strategy Director at Dalgety plc.

Steve worked for 10 years at The Good Care Group who specialise in live-in care for the elderly, particularly those with dementia, which he helped grow from a start-up to a significant business. Steve has been a Trustee with NRAS since 2014 and continues to put his knowledge of finance and the healthcare sector to good use helping NRAS continue to develop as the same time as maintaining appropriate financial disciplines.

Steve is married and has 5 grown up children/step children. He is a keen golfer and a wine and food enthusiast and is currently a non-executive Director for Classic Prop Hire Ltd.

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NRAS in 2020

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