Young Voices Panel The Young Voices Panel is a special advisory board that act as the voice of young people living with JIA and RA. In May 2020, NRAS began recruiting young people to a special advisory board to act as the voice of young people living with JIA and RA. The aim was for the group to help inform NRAS on how to develop their services for teenagers, young adults, and parents of children with JIA. They are inspirational group of young people and even through the difficult times of living with JIA and RA they have all learnt how to thrive with JIA or RA. At the first meeting in June, they decided to name themselves the Young Voices to reflect their role in raising awareness of the issues affecting young people living with these chronic conditions. The Young Voices have played an integral role in recruiting the Young Persons Project Co-Ordinator and started to influence service development at NRAS, putting together a service framework for the JIA and young people side of NRAS to take forward. For RAAW (RA awareness week) and #WearPurpleForJIA they ran Facebook lives sessions, discussing how living with JIA and RA has impacted their lives. RA Awareness Week 2020 – Facebook Live Rewatch our Facebook Live from RA Awareness Week 2020 where we discussed the condition with some of our Young Voices Panel. Click to close video modal Close Members of the Young Voices Panel Ellie Potter Ellie is Chair of the Young Voices Panel and an NRAS trustee. She works in the Treasury office. Ellie has JIA. Ellie Farr Ellie is the current Miss Cheshire and a professional photographer. Ellie has RA. Catriona Boyd Catriona is a doctor working in Manchester. She was diagnosed with RA aged 19. Malachi Neat Malachi is currently studying music, media studies and photography A-levels at 6th Form. He loves dancing, will be teaching a boys only dance class, singing and is FA football referee. He was diagnosed with JIA and uveitis at 13. Magda Przybylak Magda is a medical student at the University of Cambridge. She was diagnosed with JIA aged 6. Annabel Longden Annabel has a degree in Biology and is currently a fashion model. She has JIA. Anita Masih Anita is the Digital Marketing Manager at NRAS. She is currently studying for a Masters degree. Anita has RA. Rich Flowerdew Rich works for ScoutsWales and is a Trustee of NRAS. He is the Trustee assigned to the Young Voices and advises on safeguarding. NRAS in 2023 0 Helpline enquiries 0 Publications sent out 0 People reached
RA Awareness Week 2020 – Facebook Live Rewatch our Facebook Live from RA Awareness Week 2020 where we discussed the condition with some of our Young Voices Panel. Click to close video modal Close
Ellie Potter Ellie is Chair of the Young Voices Panel and an NRAS trustee. She works in the Treasury office. Ellie has JIA.
Malachi Neat Malachi is currently studying music, media studies and photography A-levels at 6th Form. He loves dancing, will be teaching a boys only dance class, singing and is FA football referee. He was diagnosed with JIA and uveitis at 13.
Magda Przybylak Magda is a medical student at the University of Cambridge. She was diagnosed with JIA aged 6.
Anita Masih Anita is the Digital Marketing Manager at NRAS. She is currently studying for a Masters degree. Anita has RA.
Rich Flowerdew Rich works for ScoutsWales and is a Trustee of NRAS. He is the Trustee assigned to the Young Voices and advises on safeguarding.