JIA Awareness Week

Juvenile Idiopathic Arthritis Awareness Week (JIA AW) is a campaign created by NRAS to raise awareness of the condition and eliminate misconceptions by educating and informing friends, family, schools, employers of those with JIA and the general population about what juvenile idiopathic arthritis truly is.

What is JIA Awareness Week?

Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay.

The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and the general population about what juvenile idiopathic arthritis truly is. JIA is very different to osteoarthritis (OA) in that it can strike at any age under 16 and around half of those diagnosed each year will have it for life. It is an auto-immune disease, which is a key differentiating factor to OA and means that in addition to joints, it can affect organs such as the eyes. There are very serious consequences to getting a late diagnosis or a lack of targeted appropriate treatment.

JIA AW 2022 | 13-17 June 2022

Get involved with JIA Awareness Week 2022! This year we are focusing on the fluctuating condition that JIA is and no two days are the same living with JIA. #SameJIADifferentDay

#SameJIADifferentDay

During conversations with parents, children and adults living with JIA, a common theme kept coming up which is ‘why can’t people understand that JIA is a fluctuating condition?’ It can be very frustrating to keep explaining this. Some days, those living with JIA are able to do most things e.g. play football, cook, go for a run, however other days can be a struggle to even get out of bed, climb the stairs at school or work. Due to the lack of understanding of this disease some children have had teachers, friends and relatives asking them if they are faking it. They have said, ‘We need to help teachers to understand how diverse and fluctuating the disease is from day to day, I’m not lying about my symptoms they change’.

Therefore, we want to show that even though for those living with JIA, and on medications, no two days are the same, #SameJIADifferentDay.

Throughout the week we will be sharing videos and stories on our social media platforms, so please do get involved by sharing your stories and using the hashtag #SameJIADifferentDay. The more stories we get out there, the more people can understand the condition. Speak to your schools and your employers as well, share our videos with them. We want more people to understand what someone goes through each day living with JIA!

Help spread the word about JIA Awareness Week on social media using #SameJIADifferentDay and #JIAAW2022. Don’t forget to tag us in your posts!

How you can get involved

  • Share, like, retweet #SameJIADifferentDay posts, it makes a big difference!
  • You can add a social media frame to your profile: we have a JIA Awareness Week one and a Wear Purple one.
  • Order our fundraising guide and you will receive our new selfie frame and new selfie props, good day and bad day.
  • You can create a video to explain what a good day and bad day looks like for you or explaining how each day is different. For example, on a good day being able to write and on a bad day not able to hold a pen/pencil, on a good day being able to play football and a bad day struggling to walk. You can use the selfie frame/props to help you and a voiceover is fine. Please send them to jia@nras.org.uk via WeTransfer in an MP4 format.
  • You do not have to do a video; you can send your stories and photos to us with or without the selfie frame/props at jia@nras.org.uk
  • Follow our Facebook, Twitter, Instagram and our NEW TikTok account, be inspired to create your own using the hashtag #SameJIADifferentDay.
  • Remember to give consent for your photos and videos to be used by NRAS when you register for your pack, or we can email you a consent form once you have sent in your videos/photos.

NRAS in 2021

  • £ 0 raised through #WearPurpleForJIA 2020
  • 0 Calls answered
  • 0 Publications sent out
  • 0 People reached