Your Stories Stories of young people and adults with JIA and all the different ways to get connected with the JIA community. Featured Stories A History of JIA Although Juvenile Idiopathic Arthritis (JIA) had been described in England by Frederick Still, a paediatrician at Great Ormond St Hospital, in 1896 it wasn’t until 1946 that a specialised centre for the study of Juvenile Rheumatism was established at the Canadian Red Cross Memorial Hospital in Taplow, Berkshire. A Parent’s Story As a family, we had already suffered a devastating blow when our daughter Katie was diagnosed as having diabetes. However, she coped with the changes it meant extremely well, her treatment had started to work and we were all proud of the way she insisted that the illness had to fit into her lifestyle, and not the other way round. Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did. Charlotte’s Journey Charlotte’s journey began in late 2016 when we noticed she had developed a limp. Initially we thought it was her shoes so went to the shoe shop and got her properly fitted. This didn’t help. Jazmin’s Story I cannot recall a time when I did not have juvenile idiopathic arthritis (JIA). That was because I was diagnosed at 2. Imogen’s Story Imogen was born in May 2015 as the start of our little family. She was and still is such a character with a truly infectious smile and personality. Everyone who meets her is captivated by her individual, happy disposition, she really is one of those unforgettable souls. Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful. Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact. Phoebe’s Story Phoebe is 14 years old. When she was 9, she was diagnosed with JIA. Mark’s story Exhausted. Perhaps not the most eloquent way to introduce the story of my life with JIA, but given that I was diagnosed around 21 years ago when I was just eight years old, I thought it would be best to start from the beginning and the earliest thing I can remember. And the earliest thing I can remember is waking up one morning and feeling unusually exhausted. Click to close video modal Close Search Stories Try searching our resource hub to find articles, videos, tools and publications most helpful for you. I am… Child Health Professional ParentSelect topic… Diagnosis Diet and Exercise Healthcare professionals Medication Mental Health Other Conditions Research School Symptoms Transition Clear All Your Stories Meet Jodie, Ed, Rebecca and Clare Jodie, Ed, Rebecca and Clare share their personal experience of living with juvenile idiopathic arthritis (JIA) in this video. Your Stories Phoebe’s Story Phoebe is 14 years old. When she was 9, she was diagnosed with JIA. Your Stories Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful. Your Stories Craig takes on the 100 mile challenge Craig, a keen cyclist faced the challenge of a lifetime when he took part in the 2016 RideLondon 100 to raise funds for JIA-at-NRAS. Your Stories Rowena’s Story – Living with a child with Juvenile Arthritis Rowena was diagnosed with JIA at two years old so we have not really got much experience of her not having arthritis. Load more ↓ Help support others Together we can… ut augue lacinia, at viverra est semper. Sed sapien metus, scelerisque nec pharetra id, tempor a tortor. Pellentesque non digniss. MonthlySinglePay in Funds £5£8£15Other £18.63£37.26£49.68Other £50£100£200Other Donate now! NRAS in 2023 0 Helpline enquiries 0 Publications sent out 0 People reached
Featured Stories A History of JIA Although Juvenile Idiopathic Arthritis (JIA) had been described in England by Frederick Still, a paediatrician at Great Ormond St Hospital, in 1896 it wasn’t until 1946 that a specialised centre for the study of Juvenile Rheumatism was established at the Canadian Red Cross Memorial Hospital in Taplow, Berkshire. A Parent’s Story As a family, we had already suffered a devastating blow when our daughter Katie was diagnosed as having diabetes. However, she coped with the changes it meant extremely well, her treatment had started to work and we were all proud of the way she insisted that the illness had to fit into her lifestyle, and not the other way round. Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did. Charlotte’s Journey Charlotte’s journey began in late 2016 when we noticed she had developed a limp. Initially we thought it was her shoes so went to the shoe shop and got her properly fitted. This didn’t help. Jazmin’s Story I cannot recall a time when I did not have juvenile idiopathic arthritis (JIA). That was because I was diagnosed at 2. Imogen’s Story Imogen was born in May 2015 as the start of our little family. She was and still is such a character with a truly infectious smile and personality. Everyone who meets her is captivated by her individual, happy disposition, she really is one of those unforgettable souls. Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful. Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact. Phoebe’s Story Phoebe is 14 years old. When she was 9, she was diagnosed with JIA. Mark’s story Exhausted. Perhaps not the most eloquent way to introduce the story of my life with JIA, but given that I was diagnosed around 21 years ago when I was just eight years old, I thought it would be best to start from the beginning and the earliest thing I can remember. And the earliest thing I can remember is waking up one morning and feeling unusually exhausted.
A History of JIA Although Juvenile Idiopathic Arthritis (JIA) had been described in England by Frederick Still, a paediatrician at Great Ormond St Hospital, in 1896 it wasn’t until 1946 that a specialised centre for the study of Juvenile Rheumatism was established at the Canadian Red Cross Memorial Hospital in Taplow, Berkshire.
A Parent’s Story As a family, we had already suffered a devastating blow when our daughter Katie was diagnosed as having diabetes. However, she coped with the changes it meant extremely well, her treatment had started to work and we were all proud of the way she insisted that the illness had to fit into her lifestyle, and not the other way round.
Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did.
Charlotte’s Journey Charlotte’s journey began in late 2016 when we noticed she had developed a limp. Initially we thought it was her shoes so went to the shoe shop and got her properly fitted. This didn’t help.
Jazmin’s Story I cannot recall a time when I did not have juvenile idiopathic arthritis (JIA). That was because I was diagnosed at 2.
Imogen’s Story Imogen was born in May 2015 as the start of our little family. She was and still is such a character with a truly infectious smile and personality. Everyone who meets her is captivated by her individual, happy disposition, she really is one of those unforgettable souls.
Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful.
Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact.
Mark’s story Exhausted. Perhaps not the most eloquent way to introduce the story of my life with JIA, but given that I was diagnosed around 21 years ago when I was just eight years old, I thought it would be best to start from the beginning and the earliest thing I can remember. And the earliest thing I can remember is waking up one morning and feeling unusually exhausted.
Search Stories Try searching our resource hub to find articles, videos, tools and publications most helpful for you. I am… Child Health Professional ParentSelect topic… Diagnosis Diet and Exercise Healthcare professionals Medication Mental Health Other Conditions Research School Symptoms Transition Clear All Your Stories Meet Jodie, Ed, Rebecca and Clare Jodie, Ed, Rebecca and Clare share their personal experience of living with juvenile idiopathic arthritis (JIA) in this video. Your Stories Phoebe’s Story Phoebe is 14 years old. When she was 9, she was diagnosed with JIA. Your Stories Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful. Your Stories Craig takes on the 100 mile challenge Craig, a keen cyclist faced the challenge of a lifetime when he took part in the 2016 RideLondon 100 to raise funds for JIA-at-NRAS. Your Stories Rowena’s Story – Living with a child with Juvenile Arthritis Rowena was diagnosed with JIA at two years old so we have not really got much experience of her not having arthritis. Load more ↓
Your Stories Meet Jodie, Ed, Rebecca and Clare Jodie, Ed, Rebecca and Clare share their personal experience of living with juvenile idiopathic arthritis (JIA) in this video.
Your Stories Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful.
Your Stories Craig takes on the 100 mile challenge Craig, a keen cyclist faced the challenge of a lifetime when he took part in the 2016 RideLondon 100 to raise funds for JIA-at-NRAS.
Your Stories Rowena’s Story – Living with a child with Juvenile Arthritis Rowena was diagnosed with JIA at two years old so we have not really got much experience of her not having arthritis.
Help support others Together we can… ut augue lacinia, at viverra est semper. Sed sapien metus, scelerisque nec pharetra id, tempor a tortor. Pellentesque non digniss. MonthlySinglePay in Funds £5£8£15Other £18.63£37.26£49.68Other £50£100£200Other Donate now!