Connecting with others In this section you can find stories shared by the JIA at NRAS Community. Search for stories relevant to you, and other ways you can join the community. JoinTogether online groups The Covid-19 pandemic highlighted the need for many RA and JIA patients and parents/carers of children with JIA to be able to find new ways to connect with others like themselves. Through these new digital groups you can connect with others with similar interests and lifestyle choices. All groups are run by NRAS Volunteers. Find out more Web link Join HealthUnlocked Sign-up to become a part of our online JIA community, HealthUnlocked. Ask questions and speak to others with JIA in our online forum. Your Stories Yes, kids can get it too I’m going to be honest, I’m awful at writing about myself. I find it awkward and I’m never sure if I’m too whiny, or if it comes across that I’m trying too hard to be light-hearted and just ends up sounding absolutely miserable as a result. I am a worrier by nature, so I of course panicked when I was told that I had developed a disease. Summer’s story – a mother’s perspective of life with JIA Summer was 7 when she first complained of aches and pains in her legs. I put it down to growing pains which I remember having myself as a child. These pains went on for weeks and progressively became worse, so I made an appointment with our local GP who suggested she had a blood test. Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact. Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did. Click to close video modal Close I am… Child Health Professional ParentSelect topic… Diagnosis Diet and Exercise Healthcare professionals Medication Mental Health Other Conditions Research School Symptoms Transition Clear All Your Stories Meet Jodie, Ed, Rebecca and Clare Jodie, Ed, Rebecca and Clare share their personal experience of living with juvenile idiopathic arthritis (JIA) in this video. Your Stories Phoebe’s Story Phoebe is 14 years old. When she was 9, she was diagnosed with JIA. Your Stories Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful. Your Stories Craig takes on the 100 mile challenge Craig, a keen cyclist faced the challenge of a lifetime when he took part in the 2016 RideLondon 100 to raise funds for JIA-at-NRAS. Your Stories Rowena’s Story – Living with a child with Juvenile Arthritis Rowena was diagnosed with JIA at two years old so we have not really got much experience of her not having arthritis. Load more ↓ Connect online Facebook Join a community of over 3,000 people Twitter Follow @JIA_NRAS on Twitter YouTube Watch all our videos in one place Instagram Follow @jia_at_nras TikTok Follow us @jia_nras HealthUnlocked Ask questions and interact with others in our forum Get Involved There are many ways in which you can get involved to support JIA-at-NRAS, from holding a tea party to joining in with our campaigns. Help by donating Donate today to change the lives of those with juvenile idiopathic arthritis. Help by fundraising We need your help to continue our work and there’s lots of ways to do so! Help by campaigning Find out about what we do and help us to campaign for the change we need. Help support others Because of your generous donations JIA-at-NRAS will continue to be there for everyone affected by JIA. MonthlySinglePay in Funds £5£8£15Other £18.63£37.26£49.68Other £50£100£200Other Donate now! NRAS in 2023 0 Helpline enquiries 0 Publications sent out 0 People reached
JoinTogether online groups The Covid-19 pandemic highlighted the need for many RA and JIA patients and parents/carers of children with JIA to be able to find new ways to connect with others like themselves. Through these new digital groups you can connect with others with similar interests and lifestyle choices. All groups are run by NRAS Volunteers. Find out more
Web link Join HealthUnlocked Sign-up to become a part of our online JIA community, HealthUnlocked. Ask questions and speak to others with JIA in our online forum.
Web link Join HealthUnlocked Sign-up to become a part of our online JIA community, HealthUnlocked. Ask questions and speak to others with JIA in our online forum.
Your Stories Yes, kids can get it too I’m going to be honest, I’m awful at writing about myself. I find it awkward and I’m never sure if I’m too whiny, or if it comes across that I’m trying too hard to be light-hearted and just ends up sounding absolutely miserable as a result. I am a worrier by nature, so I of course panicked when I was told that I had developed a disease. Summer’s story – a mother’s perspective of life with JIA Summer was 7 when she first complained of aches and pains in her legs. I put it down to growing pains which I remember having myself as a child. These pains went on for weeks and progressively became worse, so I made an appointment with our local GP who suggested she had a blood test. Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact. Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did.
Yes, kids can get it too I’m going to be honest, I’m awful at writing about myself. I find it awkward and I’m never sure if I’m too whiny, or if it comes across that I’m trying too hard to be light-hearted and just ends up sounding absolutely miserable as a result. I am a worrier by nature, so I of course panicked when I was told that I had developed a disease.
Summer’s story – a mother’s perspective of life with JIA Summer was 7 when she first complained of aches and pains in her legs. I put it down to growing pains which I remember having myself as a child. These pains went on for weeks and progressively became worse, so I made an appointment with our local GP who suggested she had a blood test.
Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact.
Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did.
I am… Child Health Professional ParentSelect topic… Diagnosis Diet and Exercise Healthcare professionals Medication Mental Health Other Conditions Research School Symptoms Transition Clear All Your Stories Meet Jodie, Ed, Rebecca and Clare Jodie, Ed, Rebecca and Clare share their personal experience of living with juvenile idiopathic arthritis (JIA) in this video. Your Stories Phoebe’s Story Phoebe is 14 years old. When she was 9, she was diagnosed with JIA. Your Stories Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful. Your Stories Craig takes on the 100 mile challenge Craig, a keen cyclist faced the challenge of a lifetime when he took part in the 2016 RideLondon 100 to raise funds for JIA-at-NRAS. Your Stories Rowena’s Story – Living with a child with Juvenile Arthritis Rowena was diagnosed with JIA at two years old so we have not really got much experience of her not having arthritis. Load more ↓
Your Stories Meet Jodie, Ed, Rebecca and Clare Jodie, Ed, Rebecca and Clare share their personal experience of living with juvenile idiopathic arthritis (JIA) in this video.
Your Stories Hallie’s Story My name is Hallie Jane Jenkins and I am 8 years old. I was diagnosed with JIA in 2016 just after my 6th birthday. My legs would ache an awful lot when I walked and one morning I woke up and my left knee was very very swollen and painful.
Your Stories Craig takes on the 100 mile challenge Craig, a keen cyclist faced the challenge of a lifetime when he took part in the 2016 RideLondon 100 to raise funds for JIA-at-NRAS.
Your Stories Rowena’s Story – Living with a child with Juvenile Arthritis Rowena was diagnosed with JIA at two years old so we have not really got much experience of her not having arthritis.
Connect online Facebook Join a community of over 3,000 people Twitter Follow @JIA_NRAS on Twitter YouTube Watch all our videos in one place Instagram Follow @jia_at_nras
Get Involved There are many ways in which you can get involved to support JIA-at-NRAS, from holding a tea party to joining in with our campaigns. Help by donating Donate today to change the lives of those with juvenile idiopathic arthritis. Help by fundraising We need your help to continue our work and there’s lots of ways to do so! Help by campaigning Find out about what we do and help us to campaign for the change we need.
Help support others Because of your generous donations JIA-at-NRAS will continue to be there for everyone affected by JIA. MonthlySinglePay in Funds £5£8£15Other £18.63£37.26£49.68Other £50£100£200Other Donate now!