News

JIA Residential Weekend – How the Weekend Went

Despite the monsoon weather conditions, mud, bunk beds and plastic plates, this weekend was a true reflection of how children and young people with JIA and their families can come together and truly benefit from peer support. Both the children and parents left feeling less isolated, empowered and more informed.

Supporting children with JIA in schools

Anne Gilbert, Youth and Family Services Manager for JIA-at-NRAS, discusses how schools can address effectively the needs of pupils with JIA and support their families.

Bushcraft Day Feedback and Photos

We look back on our first ever Bushcraft day that took place in Oxford on 8th August 2017.

Project to raise awareness of JIA in Wales

NRAS has been working on a project to raise awareness of JIA in Wales and to campaign for a fully-dedicated multi-disciplinary paediatric rheumatology service in South Wales.

Arthritis Charities Welcome Rheumatology Decision for Wales

Welsh Assembly Members have voted overwhelmingly in support of a motion calling on the Government to provide a fully-dedicated rheumatology service for children living with Juvenile Idiopathic Arthritis (JIA) in South Wales.

Family Day 2017 – Photos

After what was said to have been the wettest June for 30 years the sun shone on the JIA-at- NRAS Family Fun Day on 1 July, which was again held at Nell Bank, Ilkley in West Yorkshire.

Safe in School – Health Conditions in Schools Alliance

Over 1 million pupils live with long term medical conditions in the UK!
The Health Conditions in School Alliance (HSA) is working hard to make sure these children get the right care and support they need in school.

We are a proud member of the HSA and work with them regularly to improve support for people with JIA in schools.

East of England Fun Day: Photos

This year the event was held at the Athenaeum, an 18th Century building right on the main square in Bury St Edmunds. The afternoon included lots of fun craft activities for the children and young people and a photo booth, while the parents and relatives who came along attended informative sessions with a host of Healthcare Professionals (HCPs) from the East of England’s Paediatric rheumatology team.

My visit to the Department of Education

On Monday this week I visited officials at the Department of Education in London, together with colleagues from the Health Conditions in School Alliance (HCSA), to share their communication expertise and to discuss possible plans for them to endorse and promote a video the HCSA has produced.

Family Day 2016: A wonderful day!

This year we held our Annual Family Fun Day in a different venue and in a rather beautiful part of the country and not only did we delight in some amazing northern hospitality but also fantastic Yorkshire sunshine.