News

JIA Services Survey | Help Us Improve

We have launched a new survey to see what your thoughts are on how to develop our JIA service in 2020.

Do you want to act in a movie? Are you aged between 7 to 13 and living with JIA?

An award winning filmmaker is looking for a young actor with Juvenile Arthritis, female or male, age 7-13, to play the lead role in a new short film about an astronaut called The Boy (or Girl) from Outer Space.

The writer and director Tom Beckwith Phillips is himself a someone who has lived with JIA since age 7, and the film aims to shed light on the experience of being diagnosed with Juvenile Arthritis.

Exeter Family Fun Day 2019

This was the first time JIA-at-NRAS hosted a family fun day in the South West of the UK. We were looking forward to meeting lots of new families, children and young people.

Bushcraft Day | 1 August 2019 | York

Take a look to see how the day went at our Bushcraft Day in Castle Howard!

Bushcraft Day | 30 July 2019 | Oxford

Check out how our adventurers got on in Oxford on our first Bushcraft Day of 2019!

Coping with swelling during the summer months

Warm weather generally makes children feel active and motivated. But for children and young people with JIA, the warm weather might bring additional challenges. While it’s not uncommon for feet, ankles, and hands to swell up in the heat, those already dealing with JIA swelling may experience further tenderness.

Children at Cecil Gowing Infant School are inspired to Help a Good Cause

Children at Cecil Gowing Infant School are quite used to seeing their school featured in ‘Just Sprowston’ and this month two of the children requested that they write the article themselves!

Growing evidence for the importance of a healthy gut in JIA

Great Ormond Street Hospital (GOSH) are approximately 2 years into a study that is looking at how gut bacteria differs between healthy children and those with arthritis.

Reaction to Martine’s Story with JIA (BBC Panorama)

The first episode of a profoundly bleak but crucially informative two-part Panorama, Crisis in Care (BBC One, Wednesday 29th May at 9 pm), highlighted the adult social care system on the brink and in dire need of reform after years of austerity. A BBC social affairs correspondent spent a year in Somerset, a county with one of the UK’s fastest ageing populations. There, the council spends 42 pence in every pound of council tax on funding adult social care. One of the case studies highlighted was Martine, a 37-year-old mother of triplets with very severe juvenile idiopathic arthritis (JIA) since the age of two, cared for by her partner. 

Do you know who the Governors are at your child’s school and how to contact them?

Supporting pupils at school with medical conditions – Statutory guidance for governing bodies of maintained schools and proprietors of academies in England