Scroll down Support for living with JIA JIA-at-NRAS is a part of the National Rheumatoid Arthritis Society (NRAS). We provide information and support services for those affected by juvenile idiopathic arthritis (JIA), their families, friends, carers, and health professionals. About us Donate to help What's Happening News, 22 Apr Make a difference to a child’s tomorrow NRAS wants to help families of a young person feel empowered and supported when beginning their challenging journey into JIA. This is why we want to set up the brand-new service called New2JIA Right Start. News, 08 Apr JIA Collaborative A patient-centred programme of quality improvement work across participating UK paediatric rheumatology centres. The British Society for Rheumatology (BSR) have funded a two-year JIA Quality Improvement (QI) programme, working with clinical and academic paediatric rheumatology communities, patient/parent representatives, colleagues across BSR and an external provider called Rubis.QI The programme will be led by Dr Flora McErlane and Dr Gavin […] Event, on 13 Jun 2022 JIA Awareness Week What is JIA Awareness Week? Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay. The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and the general population […] Get all the latest news and events straight to your inbox with our quarterly email. Don't worry, we won’t send you spam! Sign up About Juvenile Idiopathic Arthritis All our information on Juvenile idiopathic arthritis, what it is, how it’s managed and living with the condition. What is JIA? → JIA means there is inflammation in a child’s joints that isn’t caused by any other condition. Symptoms of JIA → JIA is more than just painful joints. There are a number of symptoms that may be experienced and age is a big factor in this. JIA Diagnosis → There are a number of different investigations used in diagnoses, including blood tests and scans, along with a discussion about symptoms. JIA Medication → JIA is an auto-immune condition, so the main drugs used to control it are drugs called ‘immunosuppressants’. Search for resources Try searching our resource hub to find the articles, videos, tools and publications most helpful for you. I am… Child Health Professional Parent TeacherSelect topic… COVID-19 Diagnosis Diet and Exercise Healthcare professionals JIA-at-NRAS News Medication Mental Health Other Conditions Research School Symptoms TransitionSelect resource type… Article Publication Video Clear All Article Latest COVID-19 Update: February 2022 Latest COVID-19 Update: February 2022 Latest news on Covid 19 Vaccinations and Anti-Viral treatments for Children and Young people with Paediatric Rheumatological conditions. As you will be aware, there have been lots of developments around the vaccination roll out and some new anti-viral treatments. You may like to know how this affects your child or […] Article Mycophenolate mofetil How to say it? My-co-fenno-late moffet-ill Other names Cellcept Type of JIA Uveitis associated with JIA How is it taken? Tablet; liquid How often? Twice daily How long for? Long term – to maintain control of uveitis for at least two years How soon does it start working? Six to 12 weeks Background Mycophenolate is […] Article Leflunomide How to say it? Le-flu-noe-mide Other names: Arava How is it taken? Tablet How often? Once daily How long for? Long term How soon does it start working? After several weeks Usage Leflunomide is sometimes used as a valuable alternative to methotrexate, especially when there is methotrexate-associated nausea. Although it does not cause nausea, in […] Article Individual Healthcare Plan and Covering Letter How schools meet the education needs of pupils with health conditions depends on guidance and legislation which varies across the four nations. In England and Wales, schools must fill in an Individual Healthcare Plan (IHP). Please note this is different to the Education, Health and Care (EHC) plan. Although they are not routinely used in […] Video Facebook Live: #WearPurpleForJIA Week: Children’s Q&A with Health Care professionals Facebook Live: #WearPurpleForJIA Week: Children’s Q&A with Health Care professionals 17/06/2021 Load more ↓ Get Involved There are many ways in which you can get involved to support JIA-at-NRAS, from holding a tea party to joining in with our campaigns. Help by donating Donate today to change the lives of those with juvenile idiopathic arthritis. Help by fundraising We need your help to continue our work and there’s lots of ways to do so! Help by campaigning Find out about what we do and help us to campaign for the change we need. JIA Awareness Week 2022 What is JIA Awareness Week? Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay. The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and […] Products View JIA Wristband £2.50 inc. VAT View JIA-at-NRAS T-Shirt (Child) £5.00 – £7.00 inc. VAT View JIA-at-NRAS T-Shirt (Adult) £6.00 inc. VAT Your Stories Summer’s story – a mother’s perspective of life with JIA Summer was 7 when she first complained of aches and pains in her legs. I put it down to growing pains which I remember having myself as a child. These pains went on for weeks and progressively became worse, so I made an appointment with our local GP who suggested she had a blood test. Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact. Yes, kids can get it too I’m going to be honest, I’m awful at writing about myself. I find it awkward and I’m never sure if I’m too whiny, or if it comes across that I’m trying too hard to be light-hearted and just ends up sounding absolutely miserable as a result. I am a worrier by nature, so I of course panicked when I was told that I had developed a disease. Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did. Click to close video modal Close Help support others Because of your generous donations JIA-at-NRAS will continue to be there for everyone affected by JIA. MonthlySinglePay in Funds £5£8£15Other £18.63£37.26£49.68Other £50£100£200Other Donate now! NRAS in 2021 £ 0 raised through #WearPurpleForJIA 2020 0 Calls answered 0 Publications sent out 0 People reached
What's Happening News, 22 Apr Make a difference to a child’s tomorrow NRAS wants to help families of a young person feel empowered and supported when beginning their challenging journey into JIA. This is why we want to set up the brand-new service called New2JIA Right Start. News, 08 Apr JIA Collaborative A patient-centred programme of quality improvement work across participating UK paediatric rheumatology centres. The British Society for Rheumatology (BSR) have funded a two-year JIA Quality Improvement (QI) programme, working with clinical and academic paediatric rheumatology communities, patient/parent representatives, colleagues across BSR and an external provider called Rubis.QI The programme will be led by Dr Flora McErlane and Dr Gavin […] Event, on 13 Jun 2022 JIA Awareness Week What is JIA Awareness Week? Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay. The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and the general population […] Get all the latest news and events straight to your inbox with our quarterly email. Don't worry, we won’t send you spam! Sign up
News, 22 Apr Make a difference to a child’s tomorrow NRAS wants to help families of a young person feel empowered and supported when beginning their challenging journey into JIA. This is why we want to set up the brand-new service called New2JIA Right Start.
News, 08 Apr JIA Collaborative A patient-centred programme of quality improvement work across participating UK paediatric rheumatology centres. The British Society for Rheumatology (BSR) have funded a two-year JIA Quality Improvement (QI) programme, working with clinical and academic paediatric rheumatology communities, patient/parent representatives, colleagues across BSR and an external provider called Rubis.QI The programme will be led by Dr Flora McErlane and Dr Gavin […]
Event, on 13 Jun 2022 JIA Awareness Week What is JIA Awareness Week? Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay. The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and the general population […]
About Juvenile Idiopathic Arthritis All our information on Juvenile idiopathic arthritis, what it is, how it’s managed and living with the condition. What is JIA? → JIA means there is inflammation in a child’s joints that isn’t caused by any other condition. Symptoms of JIA → JIA is more than just painful joints. There are a number of symptoms that may be experienced and age is a big factor in this. JIA Diagnosis → There are a number of different investigations used in diagnoses, including blood tests and scans, along with a discussion about symptoms. JIA Medication → JIA is an auto-immune condition, so the main drugs used to control it are drugs called ‘immunosuppressants’.
Search for resources Try searching our resource hub to find the articles, videos, tools and publications most helpful for you. I am… Child Health Professional Parent TeacherSelect topic… COVID-19 Diagnosis Diet and Exercise Healthcare professionals JIA-at-NRAS News Medication Mental Health Other Conditions Research School Symptoms TransitionSelect resource type… Article Publication Video Clear All Article Latest COVID-19 Update: February 2022 Latest COVID-19 Update: February 2022 Latest news on Covid 19 Vaccinations and Anti-Viral treatments for Children and Young people with Paediatric Rheumatological conditions. As you will be aware, there have been lots of developments around the vaccination roll out and some new anti-viral treatments. You may like to know how this affects your child or […] Article Mycophenolate mofetil How to say it? My-co-fenno-late moffet-ill Other names Cellcept Type of JIA Uveitis associated with JIA How is it taken? Tablet; liquid How often? Twice daily How long for? Long term – to maintain control of uveitis for at least two years How soon does it start working? Six to 12 weeks Background Mycophenolate is […] Article Leflunomide How to say it? Le-flu-noe-mide Other names: Arava How is it taken? Tablet How often? Once daily How long for? Long term How soon does it start working? After several weeks Usage Leflunomide is sometimes used as a valuable alternative to methotrexate, especially when there is methotrexate-associated nausea. Although it does not cause nausea, in […] Article Individual Healthcare Plan and Covering Letter How schools meet the education needs of pupils with health conditions depends on guidance and legislation which varies across the four nations. In England and Wales, schools must fill in an Individual Healthcare Plan (IHP). Please note this is different to the Education, Health and Care (EHC) plan. Although they are not routinely used in […] Video Facebook Live: #WearPurpleForJIA Week: Children’s Q&A with Health Care professionals Facebook Live: #WearPurpleForJIA Week: Children’s Q&A with Health Care professionals 17/06/2021 Load more ↓
Article Latest COVID-19 Update: February 2022 Latest COVID-19 Update: February 2022 Latest news on Covid 19 Vaccinations and Anti-Viral treatments for Children and Young people with Paediatric Rheumatological conditions. As you will be aware, there have been lots of developments around the vaccination roll out and some new anti-viral treatments. You may like to know how this affects your child or […]
Article Mycophenolate mofetil How to say it? My-co-fenno-late moffet-ill Other names Cellcept Type of JIA Uveitis associated with JIA How is it taken? Tablet; liquid How often? Twice daily How long for? Long term – to maintain control of uveitis for at least two years How soon does it start working? Six to 12 weeks Background Mycophenolate is […]
Article Leflunomide How to say it? Le-flu-noe-mide Other names: Arava How is it taken? Tablet How often? Once daily How long for? Long term How soon does it start working? After several weeks Usage Leflunomide is sometimes used as a valuable alternative to methotrexate, especially when there is methotrexate-associated nausea. Although it does not cause nausea, in […]
Article Individual Healthcare Plan and Covering Letter How schools meet the education needs of pupils with health conditions depends on guidance and legislation which varies across the four nations. In England and Wales, schools must fill in an Individual Healthcare Plan (IHP). Please note this is different to the Education, Health and Care (EHC) plan. Although they are not routinely used in […]
Video Facebook Live: #WearPurpleForJIA Week: Children’s Q&A with Health Care professionals Facebook Live: #WearPurpleForJIA Week: Children’s Q&A with Health Care professionals 17/06/2021
Get Involved There are many ways in which you can get involved to support JIA-at-NRAS, from holding a tea party to joining in with our campaigns. Help by donating Donate today to change the lives of those with juvenile idiopathic arthritis. Help by fundraising We need your help to continue our work and there’s lots of ways to do so! Help by campaigning Find out about what we do and help us to campaign for the change we need. JIA Awareness Week 2022 What is JIA Awareness Week? Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay. The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and […]
JIA Awareness Week 2022 What is JIA Awareness Week? Following on from the success of NRAS annual Rheumatoid Arthritis Awareness Week (RAAW), this year NRAS are having the first JIA Awareness Week #SameJIADifferentDay. The campaign is to raise awareness of the condition and eliminate these misconceptions by educating and informing friends, family, schools, employers of those with JIA and […]
Your Stories Summer’s story – a mother’s perspective of life with JIA Summer was 7 when she first complained of aches and pains in her legs. I put it down to growing pains which I remember having myself as a child. These pains went on for weeks and progressively became worse, so I made an appointment with our local GP who suggested she had a blood test. Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact. Yes, kids can get it too I’m going to be honest, I’m awful at writing about myself. I find it awkward and I’m never sure if I’m too whiny, or if it comes across that I’m trying too hard to be light-hearted and just ends up sounding absolutely miserable as a result. I am a worrier by nature, so I of course panicked when I was told that I had developed a disease. Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did.
Summer’s story – a mother’s perspective of life with JIA Summer was 7 when she first complained of aches and pains in her legs. I put it down to growing pains which I remember having myself as a child. These pains went on for weeks and progressively became worse, so I made an appointment with our local GP who suggested she had a blood test.
Lucien’s Story When I look at a photograph of my boy just before his 3rd birthday, he’s like a live wire, bursting with energy. That’s the way we see young kids. Yet my kid has what’s called Systemic Onset Juvenile Idiopathic Arthritis which is the rarest form of JIA and can have the greatest impact.
Yes, kids can get it too I’m going to be honest, I’m awful at writing about myself. I find it awkward and I’m never sure if I’m too whiny, or if it comes across that I’m trying too hard to be light-hearted and just ends up sounding absolutely miserable as a result. I am a worrier by nature, so I of course panicked when I was told that I had developed a disease.
Bella’s story At 18 months old, Isabella-May woke up feeling poorly with a high temperature and sickness – nothing overly concerning. By the next day she was limping and still poorly so we took her to the GP who decided she had an ear infection. A week passed and she still wasn’t right. She was barely moving and limping when she did.
Help support others Because of your generous donations JIA-at-NRAS will continue to be there for everyone affected by JIA. MonthlySinglePay in Funds £5£8£15Other £18.63£37.26£49.68Other £50£100£200Other Donate now!
NRAS in 2021 £ 0 raised through #WearPurpleForJIA 2020 0 Calls answered 0 Publications sent out 0 People reached